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Some Links:

  • NH Family Voices - Maintains an extensive lending library of books. Parent consultants are also available to answer your questions and to help you to access community supports. NH Family Voices is run by parents having children with special health care needs. NHFV has a free lending library, a quarterly newsletter called "Pass It On," individual help and workshops in health care financing as well as working with health care systems, help in working with the school system, assisting with starting support groups, information on specific illnesses and conditions, and a collection of catalogs and resources for daily living equipment, toys, and adapted equipment.
    (800) 852-3345 X4525 nhfv@yahoo.com
  • National Brain Tumor Society - National Brain Tumor Society brings together the best in brain tumor research and supportive patient services. We offer hope to patients, families, and caregivers during every stage of the treatment journey. We invest wisely and strategically in innovative research that will lead to advances and ultimately to a cure.
    (800) 770-8287 info@braintumor.org
  • NH Special Medical Services
    NH Special Medical Services provides medical and financial services to
    children with special health care needs, as well as referrals to community resources, care coordination services, nutritional consultation, psychological and physical therapy consultation.
    (800) 852-3345 X4488
  • Partners in Health
    Partners in Health has regional offices throughout New Hampshire which link families whose children have chronic health problems with community resources. PIH is a great source of emotional support through groups, counseling, referrals, as well as help with services such as SSI and Medicaid applications.
    (800) 656-3333.
  • Parent-To-Parent
    Parent-To-Parent connects parents with one another whose children have similar illnesses, giving them an opportunity to talk with someone who has "been there" and who can give useful info on resources, coping, etc.
    (800) 698-LINK
    (603) 448-6393
  • The Krempels Foundation
    Helps NH families and patients, children or adult, who have brain tumors, traumatic brain injury, or stroke and helps with living expenses and wishes.
    (603) 659-2001.

Childhood Cancer related organizations:

  • Guide to Internet Resources for Childhood Cancer
  • First Connections
    "First Connections" links NH Parents of newly-diagnosed children with
    parents who have been through similar treatment for cancer.
    (508) 879-5083.
  • University of Miami Pediatric Neuro-Oncology Program
  • National Childhood Cancer Foundation
  • Neuroblastoma Children's Cancer Society
    P.O. Box 957672
    Hoffman Estates IL 60195
    (847)490-0705 fax
  • Children's Neuroblastoma Cancer Foundation
    Children's Neuroblastoma Cancer Foundation has a good website, offers an annual conference, provides the NB Journal
    (866) 671-2623
  • Childhood Leukemia Foundation
    Provides "Geoffrey Dollars" which are Toys R Us gift cards for teens in treatment, "Hip Hats" which are free, custom-made hats with human hair attached, camp scholarships, and financial assistance up to $500 for families in need. Pat Minor, Program Director.
    (732) 840-4533.
  • National Cancer Institute
    Cancer Information Service
  • The Caitlin Raymond International Registry of Bone Marrow Donor Banks
    University of Massachusetts Medical Center
    55 Lake Avenue North
    Worcester, MA 01655
    (800) 726-2824
    (508) 334-8969
  • National Marrow Donor Program
    Suite 500
    3001 Broadway Street Northeast
    Minneapolis, MN 55413-1753
  • National Bone Marrow Transplant Link
  • COTA - Children's Organ Transplant Association, Inc.
    2501 COTA Drive
    Bloomington IN 47403
    812-336-8885 (fax)
  • Leukemia Research Foundation
    820 Davis Street, Suite 420
    Evanston, Illinois 60201
    (847) 424-0600
    (847) 424-0606 Fax
  • Leukemia Society of America
    495 Old Connecticut Path
    Suite 220
    Framingham, MA 01701
    (508) 879-5083
    (800) 688-6572 (Toll Free)
    (508) 879-8163 (Fax)
  • Leukemia and Lymphoma Society
    Covers leukemia, lymphoma, multiple myeloma and Hodgkin's disease. Good source of information and educational material; limited financial support.
    (800) 955-4572.
  • National Children's Cancer Society
    A national support organization, which provides education and limited financial support for living expenses related to cancer.
    1015 Locust St., suite 600
    St. Louis MO 63101
    (314) 241-1600
    (800) 5-FAMILY
  • The Children's Brain Tumor Foundation
    A good resource for basic brain and spinal cord information, parent-to-parent network, and research. They offer a newsletter, The Challenge, and patient support at a toll-free number. A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors is available to families free of charge.
    (866) 228-HOPE
  • Brain Tumor Foundation for Children, Inc.
    Has a newsletter for families. When a child is diagnosed, the family is offered direct personal support.
  • Make-a-Wish Foundation
    Make-A-Wish of NH
    (603) 623-9474
  • High Hopes Foundation of NH, Inc.
    Provides wishes, as well as limited financial support, for New Hampshire families.
    (800) 639-6804
  • The Cancer Recovery Foundation Children's Project
    This Pennsylvania-based foundation offers three important services to families: gift baskets (e.g. games, personal toys, crayons, sketchpads, stuffed animals), summer camp scholarships, and emergency financial assistance ($100 limit).
  • STAR
    The STAR (Steps Toward Adult Responsibility) program is a group mentoring program for teens with chronic physical health conditions and their families. Teen participants are 13 - 18 year olds whose lives are effected by chronic physical health conditions including, but not limited to, asthma, cancer, cardiology conditions, cerebral palsy, Crohn’s disease/colitis, cystic fibrosis, diabetes, hearing impairment, juvenile rheumatoid arthritis, seizure disorders and spina bifida. The centerpiece of STAR is the monthly topic-focused dinner gatherings that bring teens together with Dartmouth College student mentors who are also living with chronic health conditions. While teens and mentors meet, parents also come together in a support group led by a social worker. The goal of STAR is to provide a supportive environment in which to learn strategies to gain physical and psychological health in the face of chronic illness, and to suggest tools to help navigate a successful transition to adulthood. Please contact the STAR program at the Special Needs Support Center at 603/448-6310 or check out the website at www.starprogram.net.
  • Selfhelp Sourcebook Online
    Clearinghouse for support group information
  • The Ronald McDonald Houses (Searchable database of all RM House locations)
    One Kroc Drive
    Oak Brook, Illinois 60523
    Phone: 630.623.7048
    Fax: 630.623.7488
  • Children's Cancer Web
    A Guide to oncology resources on the internet. Most links are to specific topics found in Oncolink, NIH, NCI, Health Canada and other reputable sources.
    For 6-12 year old brothers and sisters of children who have a chronic health condition such as cancer.
    (603) 653-1488 Toni
    (603) 443-4107 Cory

Other cancer related resources:

Websites for Kids:

  • 4YOUth List
    This is an online support mailing list for young people (12-21) with cancer. They can be on or off treatment.
  • Bandaides and Blackboards
    This is a website for children of all ages, but is divided into categories for children and teens. The focus is how to deal with medical problems of any kind and it contains helpful hints for parents, teachers and other professionals.
  • Brave Kids
    The site has contest, games and stories. It also has a chat room and is in Spanish or English.
  • Cancer Kids
    A website dedicated to children with cancer. This is a place where they can share their stories and it has a memorial section.
  • CancerSourceKids.com
    The Association of Pediatric Oncology Nurses has assisted in designing this webpage for children of all ages who have been diagnosed with cancer. It contains both information and entertainment.
  • The Captain Chemo Website
    This is an interactive comic strip/game which also teaches children about cancer and treatment.
  • Look Good, Feel Good
    This web site for teens deals with appearance issues as well as relationship and emotional issues.
  • American Brain Tumor Association
    An excellent site for medical explanations geared at children. It also has word games.
  • The Dreamsurfer Network
    The site is open to all teens with life-threatening illnesses that are referred by a hospital or clinic and who complete the necessary application.

Other Forms of Assistance:

  • Lodging near DHMC
    Families whose children are receiving medical care at DHMC are welcome to stay at David's House, the "home away from home" that is walking distance from the hospital. David's House has comfortable, attractive rooms for fifteen hospital families at a cost of $10/family/night.
  • Rest Easy
    Local lodging at discounted rates for families and friends of those being treated at Dartmouth Hitchcock Medical Center. Information is available at the hospital rotunda and Office of Care Management.
  • Travel -- By car
    Reimbursement is available in some cases for trips to and from clinic visits and hospital stays. For families covered by NH Medicaid, call the Medicaid Transportation Coordinator at (800)852-3445 X3770 or 603 271-3770. Medicaid can also provide a driver if you cannot drive yourself, or if your car is unavailable (same number). In VT, Medicaid also reimburses for mileage. A list of towns and phone numbers to call is available from Office of Care Management. In addition, the Leukemia and Lymphoma Society will pay a small amount (currently $.05/mile) for mileage (see above for phone number and website).
  • Travel - By air
    Discount and no-cost air travel for medical treatment is available for
    families and patients with cancer. National Patient Travel Center is a link to these services.
    (800) 296-1217
  • Telephone & Electric Utilities
    To make sure that telephone and electric service are maintained, utilities will honor emergency requests for one or two months maximum during a calendar year and plans must be made to pay overdue bills. Office of Care Management may be able to assist. OCM can also help you with referrals to Consumer Credit Counseling and local community assistance programs to help you get back on your feet.

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PO Box 395 Hillsboro, NH 03244