Home
Who We Are
What We Can Do
Special Events
To Learn More
Resources
Donate to CCL
Contact Information
 

This is a registered trademark of Candlelighters Childhood Cancer Foundation in the U.S. and is used under license. candlelighters.org


Resources
 

Some Links:

  • NH Family Voices - Maintains an extensive lending library of books. Parent consultants are also available to answer your questions and to help you to access community supports.
    NH Family Voices is run by parents having children with special health care needs. NHFV has a free lending library, a quarterly newsletter called "Pass It On," individual help and workshops in health care financing as well as working with health care systems, help in working with the school system, assisting with starting support groups, information on specific illnesses and conditions, and a collection of catalogs and resources for daily living equipment, toys, and adapted equipment.
    (800) 852-3345 X4525
    Nhfvweb@nhfv.org
  • The Brain Tumor Society
  • NH Special Medical Services
    NH Special Medical Services provides medical and financial services to
    children with special health care needs, as well as referrals to community resources, care coordination services, nutritional consultation, psychological and physical therapy consultation.
    (800) 852-3345 X4488
  • Partners in Health
    Partners in Health has regional offices throughout New Hampshire which link families whose children have chronic health problems with community resources. PIH is a great source of emotional support through groups, counseling, referrals, as well as help with services such as SSI and Medicaid applications.
    (800) 656-3333.
  • Parent-To-Parent
    Parent-To-Parent connects parents with one another whose children have similar illnesses, giving them an opportunity to talk with someone who has "been there" and who can give useful info on resources, coping, etc.
    (800) 698-LINK
    (603) 448-6393
  • The Krempels Foundation
    Helps NH families and patients, children or adult, who have brain tumors, traumatic brain injury, or stroke and helps with living expenses and wishes.
    (603) 659-2001.

Childhood Cancer related organizations:

Other cancer related resources:

Websites for Kids:

  • 4YOUth List
    This is an online support mailing list for young people (12-21) with cancer. They can be on or off treatment.
  • Bandaides and Blackboards
    This is a website for children of all ages, but is divided into categories for children and teens. The focus is how to deal with medical problems of any kind and it contains helpful hints for parents, teachers and other professionals.
  • Brave Kids
    The site has contest, games and stories. It also has a chat room and is in Spanish or English.
  • Cancer Kids
    A website dedicated to children with cancer. This is a place where they can share their stories and it has a memorial section.
  • CancerSourceKids.com
    The Association of Pediatric Oncology Nurses has assisted in designing this webpage for children of all ages who have been diagnosed with cancer. It contains both information and entertainment.
  • The Captain Chemo Website
    This is an interactive comic strip/game which also teaches children about cancer and treatment.
  • Look Good, Feel Good
    This web site for teens deals with appearance issues as well as relationship and emotional issues.
  • American Brain Tumor Association
    An excellent site for medical explanations geared at children. It also has word games.
  • The Dreamsurfer Network
    The site is open to all teens with life-threatening illnesses that are referred by a hospital or clinic and who complete the necessary application.

Other Forms of Assistance:

  • Lodging near DHMC
    Families whose children are receiving medical care at DHMC are welcome to stay at David's House, the "home away from home" that is walking distance from the hospital. David's House has comfortable, attractive rooms for fifteen hospital families at a cost of $10/family/night.
    643-2298
    davidshouse@valley.net
  • Rest Easy
    Local lodging at discounted rates for families and friends of those being treated at Dartmouth Hitchcock Medical Center. Information is available at the hospital rotunda and Office of Care Management.
  • Travel -- By car
    Reimbursement is available in some cases for trips to and from clinic visits and hospital stays. For families covered by NH Medicaid, call the Medicaid Transportation Coordinator at (800)852-3445 X3770 or 603 271-3770. Medicaid can also provide a driver if you cannot drive yourself, or if your car is unavailable (same number). In VT, Medicaid also reimburses for mileage. A list of towns and phone numbers to call is available from Office of Care Management. In addition, the Leukemia and Lymphoma Society will pay a small amount (currently $.05/mile) for mileage (see above for phone number and website).
  • Travel - By air
    Discount and no-cost air travel for medical treatment is available for
    families and patients with cancer. National Patient Travel Center is a link to these services.
    (800) 296-1217
  • Telephone & Electric Utilities
    To make sure that telephone and electric service are maintained, utilities will honor emergency requests for one or two months maximum during a calendar year and plans must be made to pay overdue bills. Office of Care Management may be able to assist. OCM can also help you with referrals to Consumer Credit Counseling and local community assistance programs to help you get back on your feet.
Home - Who We Are - What We Can Do - Special Events - To Learn More - Resources - Donate to CCL - Contact Information
PO Box 395 Hillsboro, NH 03244